Dr Maria Berghs

Maria Berghs is an anthropologist with a PhD in sociology and social policy. She works in the field of medical anthropology and sociology, specialising in disability studies and chronic illness. Her research interests include disability, chronic illness, global health (sickle cell and thalassaemia), humanitarianism, ethics, sociology and anthropology of cure, gender and West Africa (Sierra Leone). She has published books, numerous chapters, journal articles and commentary pieces. 

She came to Ð԰ɵç̨ to work with Professor Simon Dyson and is continuing his legacy as the Director of the Social Study of Thalassamia and Sickle Cell (TASC) Unit     They also have social science teaching resources on sickle cell which are reseach informed and free to use.

Our resources are also available at the British Sociological Association (BSA) Acknowledge Repository on ‘race’ and pedagogy, so they can be used in sociology teaching in higher education:   

The Unit for the Social Study of Thalassaemia and Sickle Cell (TASC Unit) is associated with the following institute and research centre at Ð԰ɵç̨:

Institute of Research and Innovation in Social Sciences

Mary Seacole Research Centre

2024

Simmonds, B. A., & Berghs, M. (2024). Editorial: Intersections of ageing and disability during the COVID-19 pandemic. Frontiers in Sociology, 9, 1501580. 

Berghs, M., Horne, F., Yates, S., Kemp, R. & Webster, A. (2024). The indignities of shielding during the COVID-19 pandemic for people with sickle cell: An Interpretive Phenomenological Analysis, Special Issue Intersections of Aging and Disability During the COVID-19 Pandemic: Frontiers in Medical Sociology, 9: 1334633.

Ola, B., Olushola, O., Ebenso, B. & Berghs, M. (2024). Sickle Cell Disorder and Its Psychosocial Burdens in Africa. In Sickle Cell Disease in Sub-Saharan Africa Public Health Perspectives. Bukola, B., Kanayo,K & Inusa, B. (eds.). London: Routledge.

Berghs, M., Ebenso, B. & Ola B. (2024). The Social Determinants of Severity in Sickle Cell. In Sickle Cell Disease in Sub-Saharan Africa Public Health Perspectives. Bukola, B., Kanayo, K & Inusa, B. (eds.). London: Routledge.

Berghs, M. (2024). The Critical Importance of Global Collaboration in Sickle Cell Advocacy and Management. In Sickle Cell Disorders in Sub-Saharan Africa. Bukola, B., Kanayo, K & Inusa, B. (eds.). London: Routledge.

Afeworki Abay, R. & Berghs, M. (2024). Impossible Working Lives and Disabled Bodies during Racialised Capitalism: Perspectives from Germany and the United Kingdom. In Intersectional Colonialities, Embodied Colonial Violence and Practices of Resistance at the Axis of Disability, Race, Indigeneity, Class, and Gender. Afeworki Abay R. & Soldatic, K. (eds.). London: Routledge. 

2023

Berghs, M. (2023). Philosophical and practical challenges of Ubuntu: Application to decolonial activism and conceptions of personhood and disability. In: Southern Theories Contemporary and Future Challenges. Mutanga, O. & Marovah, T.  (Eds.), London & New York: Routledge. 

Atkin, K.M., Berghs, M., & Chattoo, S. (2023). Representing Disabling Experiences: Rethinking Quality of Life when Evaluating Public Health Interventions. Politics & Policy, 1-57. 

Berghs, M. & Ebenso, B. (2023). Social Science Research & Sickle Cell. In Handbook of Social Sciences and Global Public Health.  Liamputtong, P. (Eds), Cham: Springer. 

2022

Berghs, M., Horne, F., Yates, S., Graham, S., Kemp, R., Webster, A. & Howson, C. (2022). Black Sickle Cell Patients’ Lives Matter: Healthcare, long- term shielding and psychological distress during a racialized pandemic in England – a mixed-methods study. BMJ Open, 12(9), e057141.

Cronin de Chavez, A., Berghs, M., Ola, B. & Ebenso, B. (2022). Is screening for diabetes II among patients with sickle cell trait a potential example of structural racism in healthcare? Hemasphere, 6: 56-57.

Coen-Sanchez, K., Ebenso, B., El-Mowafi, I. M., Berghs, M., Idriss-Wheeler, D., & Yaya, S. (2022). Repercussions of overturning Roe v. Wade for women across systems and beyond borders. Reproductive Health, 19(1), 1-5. 

Berghs, M, Dyson, M.A., Gabba, A., Nyandemo, S., Roberts, G., Deen, G. and Thomas, I. (2022). “I want to become someone!” Gender, Reproduction and the Moral Career of Motherhood for Women with Sickle Cell Disorders, Culture, Health and Sexuality, 25(5), 633-647.

Berghs, M. (2022). Let's Get Back to Normal? COVID-19 and the Logic of Cure. Frontiers in Sociology, 7. 

Berghs, M. (2022). An African Path to Disability Justice: Community, Relationships and Obligations: by Oche Onazi, Cham, Springer, 2020, xix+ 179 pp.

2021

Berghs, M, Dyson, S.M., Greene, A.M., Atkin, K. and Morrison, V. (2021). ‘They Can Replace You at Any Time!”: (In)Visible Hyper-Ableism, Employment and Sickle Cell Disorders in England, Scandinavian Journal of Disability Research, 23(1), 348-359. 

Dyson, S.M., Atkin, K., Berghs, M., Greene, A.M. (2021). On the possibility of a disabled life in capitalist ruins: Black workers with sickle cell disorder in England. Social Science & Medicine, 272, 113713

Berghs, M. (2021). Who gets cured? COVID-19 and developing a critical medical sociology and anthropology of cure. Frontiers, 5, 613548.

Berghs, M. (2021). An African ethics of social wellbeing: Understanding Disability and Public Health. In Disability in Africa: Inclusion, Care, and the Ethics of Humanity Falola, T. & Hamel, N. (eds). New York: University of Rochester Press.

Berghs, M. (2021). Caroline Williamson Sinalo, Rwanda After Genocide: gender, identity and post-traumatic growth. Cambridge: Cambridge University Press (pb£ 22.99–978 1 108 44459 0). 2018, xiii+ 219 pp. Africa, 91(2), 338-340.

2020

Berghs, M. & Dyson, S.M. (2020). Intersectionality and Employment in the United Kingdom: Where are all the Black Disabled People? Disability & Society, 1-24.

Berghs, M., Dyson, S.M., Gabba, A., Nyandemo, S.E., Roberts, G., Deen, G. (2020). "You have to find a caring man, like your father!" Gendering sickle cell and refashioning women's moral boundaries in Sierra Leone. Social Science & Medicine, 259, 113-148.

Berghs, M., Ebenso, B., de Chavez, A.C. & Ola, B. (2020). Time to apply a social determinants of health lens to addressing sickle cell disorders in Sub-Saharan Africa. BMJ Global Health, 5: e002601.

Peña-Fernández, A., Anjum, U., Wadoum, R. E. G., Koroma, S., & Berghs, M. (2020). Competing ethics in a pilot strategy to implement parasitology training and research in post-Ebola Sierra Leone. International Health, 12 (6): 509-514.

Berghs, M. (2020). Biosocial Model of Disability. In Encyclopedia of Gerontology and Population Aging, Gu, D. & Dupre, M.E. (eds.) Cham: Springer.

2019

Berghs, M. Chataika, T., El-Lahib, Y. & Dube, A.K. (eds.) (2019). The Routledge Handbook of Disability Activism. London: Routledge.

Berghs, M. (2019).An African ethics of social wellbeing: Understanding disability and public health In Disability in Africa, Falola, T and Hamel, N. (eds). New York: University of Rochester Press.

 

2018

Dyson, S. & Berghs, M. (2018). Ethnicity, Disability and Chronic Illness. Understanding ‘race’ and ethnicity in social welfare, Chattoo, S., Atkin, K., Graig, G. & Flynn, R.  (eds.) Bristol: Polity Press.

Berghs, M. (2018). Ethical (Dis)enchantment, Afflictive Kinship and Ebola Exceptionalism.Disability and Everyday Worlds. Thomas, G. & Sakellariou, D. (eds.). London: Routledge.

2017

Berghs, M. (2017). Cash not Care: The Planned Demolition of the UK Welfare State. By Stewart, Mo. New Generation Publishing: London. 2016. 188pp. £15.99. ISBN 978-1-78507-783-8. Self & Society, 45 (3-4), 336-341

Berghs, M. Atkin, K., Graham, H., Hatton, C. & Thomas, C. (2017). Public health, research and rights: The perspectives of deliberation panels with politically and socially active disabled people. Disability & Society, 32 (7): 945-965.

Berghs, M. (2017). Emancipatory Engagement and Co-production: Action Research for Disability Justice. SAGE Research Methods Cases Collection. London: SAGE Publications.

 

Berghs, M., Atkin, K. & Dyson, S. (2017). Resignifing the Sickle Cell Gene: Narratives of Genetic Risk, Impairment and Repair. Health, 21 (2), 171-188.

2016

 

Berghs, M. (2016). War and Embodied Memory: Becoming Disabled in Sierra Leone. London and New York: Routledge. [paperback]

 

Berghs, M., Atkin, K., Graham, H., Hatton, C. & Thomas, C. (2016). Implications for Public Health: Theories and Models of Disability. Public Health Research, 4 (8).

 

Berghs, M. (2016). Local Phantoms, Global Images and Performativity: Reparations and National Memory in Sierra Leone. Rethinking Disability. Devlieger, P., Rusch, F., Brown, S. & Strickfaden, M. Antwerpen: Garant.

 

Berghs, M. & Kabbara, N. (2016). Disabled People in Conflict and Wars. Disability in the Global South: The Critical Handbook. Grech, S. & Soldatic, K. (eds.). London: Springer.

 

Berghs, M. (2016) Disabled States and Impaired Citizens in the Global South: Bio, Necro to Impairometrics. Minority Reports. 2 (1): 237-256.

 

Berghs, M. (2016). Current Issues: Neoliberal Policy, Chronic Corruption and Disablement in West Africa: Biosecurity, Biosocial Risks and the Creation of ‘Ebola survivors’? Disability & Society, 31 (2), 275-279. [Used in Centre for Diseases and Control (CDC) United States historical exhibition on Ebola]

 

2015

 

Atkin, K., Berghs, M., & Dyson, S. (2015). ‘Who's the guy in the room?’ Involving Fathers in Antenatal Care Screening for Sickle Cell Disorders. Social Science & Medicine, 128: 212-219.

 

Berghs, M. (2015). Disability and Conflict: Rethinking Migration, Flows and Boundaries. Disability and the Global South. 2 (1): 442-459. [Invitation]

Berghs, M. (2015). Radicalising ‘Disability’ in Conflict and Post-Conflict Situations. Disability & Society, 30 (5): 743-758. [Special Issue]

 

Dyson, S., Berghs, M. & Atkin K. (2015). ‘Talk to me, there’s two of us’: Fathers and Sickle Cell Screening, Sociology, 50 (1), 178-194.

Chataika, T., Berghs, M., Mateta, A. & Shava. K. (2015). From Whose Perspective Anyway? The Quest for African Disability Rights Activism. Reclaiming Activism: Western Advocacy in Contention. De Waal, A. (ed.) London: Zed Books. [Invitation]

Berghs, M. (2015). Staying Alive is just Step One for West Africa's Ebola Survivors. The Conversation, 22 October. Available at: http://theconversation.com/staying-alive-is-just-step-one-for-west-africas-ebola-survivors-49329

Berghs, M. (2015). Britain after the Blitz: How to Rebuild a city fit for a Post-Conflict Population. The Conversation, 7th September. Available at: http://theconversation.com/britain-after-the-blitz-how-to-rebuild-a-cityfit-for-a-post-conflict-population-47111

2014

 

Berghs, M. (2014). Embodiment and Emotion in Sierra Leone. The Global Politics of Impairment and Disability: Processes and Embodiment. Soldatic, K. & Meekosha, H. (eds.). London: Routledge. [Invitation]

 

Berghs, M. (2014). Qualitative Mixed Methods Approaches in a Post-Conflict Ethnographic Case Study with War-Wounded People. SAGE Research Methods Cases collection. SAGE Publications.

 

Berghs, M. (2014). The Global Economy of 'Care.' Disabling Barriers, Enabling Environments. Swain, J., French, S., Barnes, C. & Thomas, C. (eds.). London: SAGE Publications. [Invitation]

 

Berghs, M. (2014). The New Humanitarianism: Neoliberalism, Poverty and the Creation of Disability. Disability, Human Rights and the Limits of Humanitarianism. Schuland-Vials, C. & Gill, M. (eds.). Aldershot: Ashgate.

 

Conteh, E. & Berghs, M. (2014). 'Mi At Don Poil': A Report on Reparations for Amputee and War-Wounded People in Sierra Leone. Freetown: Amputee and War-Wounded Association. [Invitation and voluntary collaboration]

 

Berghs, M., Atkin, K. & Dyson, S. (2014). Involving Fathers in Ante-Natal Screening for Sickle Cell Disorders: Improving Informed Decision Making - Summary of the Research Findings. York: University of York.

 

2013

Berghs, M. (2013). War and Embodied Memory. Becoming Disabled in Sierra Leone. Aldershot: Ashgate.

2012

Asiedu, V. & Berghs, M. (2012). Limitations of Individualistic Peacebuilding in Postwar Sierra Leone. African Conflict & Peacebuilding Review, 2 (1): 136-151.

2011

Berghs, M. & Dos Santos-Zingale, M. (2011). A Comparative Analysis: Everyday Understandings of Disability in Sierra Leone. Africa Today, 58 (2): 19-40. (Invitation special edition - Everyday Life in Postwar Sierra Leone)

Berghs, M. (2011). Embodiment and Emotion in Sierra Leone. Third World Quarterly, 32 (8): 1399-1417. (Invitation special edition - Disability in the Global South)

Berghs, M. (2011). Paying for Stories of Impairment-Parasitic or Ethical? Reflections undertaking Anthropological Research in Post-Conflict Sierra Leone. Scandinavian Journal of Disability Research, 13 (4): 255-270.

2010

Berghs, M. (2010). Coming to Terms with Inequality and Exploitation in an African State: Researching Disability in Sierra Leone. Disability & Society, 25 (7): 861-865.

 

2008

 

Gastmans,C., Berghs, M., & Dierckx de Casterlé, B. (2008). Verantwoordelijkheidspraktijken en Verpleegkundigen Gedurende de Euthanasieprogramma’s van Nazi-Duitsland (1939-1945). Témoigner: Entre Histoire et Mémoire : Revue Pluridisciplinaire de la Fondation Auschwitz. 100:157-176.

2007

 

Berghs, M., Dierckx der Casterle, B. & Gastmans, C. (2007). Practices of Responsibility and Nurses during the Euthanasia Programs of Nazi Germany: A Discussion Paper. International Journal of Nursing Studies, 44 (5): 845-854.

 

Berghs, M. (2007). Disability as Embodied Memory? Questions of Identity for the Amputees of Sierra Leone. Wagadu: A Journal of Transnational, Women's & Gender Studies, 78-92.

 

Berghs, M., de Casterle, B.D. & Gastmans, C. (2006). Nursing, Obedience, and Complicity with Eugenics: A Contextual Interpretation of Nursing Morality at the turn of the Twentieth Century. Journal of Medical Ethics, 32 (2): 117-122.

 

2005

 

Berghs, M., de Casterle, B.D. & Gastmans, C. (2005). The Complexity of Nurses' Attitudes toward Euthanasia: A Review of the Literature. Journal of Medical Ethics, 31 (8): 441-446.

 

 

 

• Disability paradigms in global north and south
• Disability, humanitarianism and conflict
• Disability, social movements, activism and rights
• Social aspects of sickle cell, gendered access to reproductive technology and involvement in RCTs
• Genomic research and the involvement of families and children
• Chronic illness and ableism
• Global public health and interventions for equity
• Sociology and anthropology of cure
• Understanding impact of COVID-19 on chronic illness and disabilities 

• Medical Sociology
• Global Public Health
• Disability
• Gender

MA Philosophy (University of Leuven, Belgium)
MA Social and Cultural Anthropology (University of Leuven, Belgium)
PhD in Sociology and Social Policy (University of Leeds, United Kingdom)

Maria has a PGCLTHE and is a HEA fellow. She has taught across the Health and Wellbeing in Society undergraduate programme supporting all modules and was a dissertation supervisor. She was module lead on Social Aspects of Health and Illness and has been co-module lead on the introductory module on Social Research Methods. She is now an Associate Professor on the Global Health MSc and module leader on the  Dissertations and Interventions in Global Health modules. She is a dissertation supervisor, personal tutor, PhD supervisor and also teaches research methods at PhD level. She is an internal PhD examiner at Ð԰ɵç̨. She is an external PhD examiner.  She is an external examiner at University of Birmingham. 

Member of the Sickle Cell Society, United Kingdom Thalassaemia Society and NHS SCT Screening Programme: Engagement, Outreach and Programme Development Advisory Group

Leicester Royal Infirmary - Steering Group - Sickle Cell and Thalassaemia

Member of the Sierra Leone Sickle Cell Forum - Technical Working Group

Advisor - European Hematology Association (EHA)  - Guidelines project for screening recommendations 

Member of Ethics of Medical Photography Network

British Sociological Association (BSA) - Medical Sociology

European Association of Social Anthropologists

The Royal Anthropological Association

Screening Engagement Project Learning Sessions for Healthcare Professionals Delivering Newborn Screening Results. Lived experiences of having carrier status. 2025. 

"Racial and Structural Disparities in Health: Rights, Treatment, and Care for People with Sickle Cell Disease" organised by Sama Resource Group for Women & Health on 7th January 2025. Invited Talk.

Government Events’ The Supporting Disabled People in the Workplace Conference 2024, taking place online 15th of October 2024. (Chair and Invited Talk with Wilkinson M., Taking Action to Address the DIsability Employment Gap and Address Workplace Stigmas).

Azienda USL - IRCCS, Reggio Emilia, Social Aspects of Sickle Cell Disease: Research, Action, Participation, 28th of September, Invited Talk.

University of Leeds, Debility, Disability and Pedagogic Practices in Disability Studies: Teaching and Researching Disability in Contemporary Times, 3rd of September 2024, Panel Talk.

University of Birmingham, Trust, Social Media, and Societal Health, Workshop, 14th December 2023, Panel Talk. 

4S, Honolulu,9th November 2023, Curating the babies? Biosociality, Carriership and Techno-Cripepistemologies, Berghs,M.,[Online presentation]

Shining light and hope on invisible illnesses. Saturday, October 7th, 2023, Butetown Community Centre, Cardiff, Equity in Health and Social Care Delivery. Berghs, M., Invited Talk.

Thackray Museum of Medicine Insights, 1st of October 2022, The story of sickle cell (SC) disease: its discovery, evolution and future, Thomas, I., Berghs, M. & Ebseno, B. Invited Talk. https://thackraymuseum.co.uk/event/insights-medical-stories-from-africa/

4th Global Congress on Sickle Cell Disease, 16th -18th of June 2022, Is screening for diabetes II among patients with sickle cell trait a potential example of structural racism in healthcare? Cronin de Chavez, A., Berghs, M., Ebenso, B., Ola, B. Poster presentation Dr. Cronin de Chavez.

4th Global Congress on Sickle Cell Disease, 16th -18th of June 2022, Understanding Barriers to and Enablers in Employment for People with Sickle Cell Disorders in England, Berghs, M. & Dyson, S.M. Poster presentation Dr. Berghs.

WRDPT, Inequality, Exploitation and Ethnographical Research in Low and Middle-Income Countries, 9th of May 2022, Advanced Qualitative Methods Training. Invited Talk Dr. Berghs. 

British Sociological Association (BSA), Building Equity and Justice Now, 21st of April 2022, Protests, refusals and counting the deaths: The development of an empirical-ethics of cure. Presenter Dr. Berghs. 

Institute of Philosophy and Sociology, Polish Academy of Sciences (IFiS PAN), Warsaw, Poland, Assemblages of Rare Diseases, 10-11 March, 2022, ‘You can’t use this to discriminate against us, nor will you use it to deny us healthcare’ – exclusion of carriers of sickle cell disease from healthcare who experience symptoms. Cronin de Chavez, A., Berghs, M., Ebenso, B. & Ola, B. Presenter: Dr. Cronin de Chavez. 

Institute of Philosophy and Sociology, Polish Academy of Sciences (IFiS PAN), Warsaw, Poland, Assemblages of Rare Diseases, 10-11 March, 2022,The Futures of Biosocial Models of Carriership and Sociology of Cures: Sickle Cell, Thalassaemia and Genomic Frontiers. Berghs, M., Ebenso, B., Cronin de Chavez, A.  & Ola, B. Presenter: Dr. Berghs

RAI, Mobilizing Methods in Medical Anthropology, London, 18-21 January 2021, Collaborations, Confounders and Ethical Misgivings, Presenter Dr. Berghs.

UMASCCO Education and Workplace Series, 1st of October, 2021, Sickle Cell in Schools: Translating the Evidence, Invited Talk, Dr. Berghs.

East Midlands Sickle Cell and Thalassaemia Education Event & Network Business Meeting, 25th of June 2021, The Psychological Impact and Social Needs of People with Sickle Cell and Thalassaemia as a result of COVID-19: Some Findings from the Pilot Study. Invited Talk, Presentation given by Francesca Horne.

Sickle Cell Society Ireland, 19th of June 2021, Invited Expert on Panel, Dr. Berghs.

Health NGO Forum Sierra Leone on SCD, December 1st, 2020, Sierra Leone Sickle Cell in Schools, Invited Talk, Dr. Berghs. 

SCD Talks organised by Australian Sickle Cell Advocacy Inc, 'Social Relationships in Sickle Cell Disease", 26th of September 2020, Invited Expert Panelist Dr. Berghs.

49th UK Forum on Haemogobin Disorders Conference in Honour of Professor David Weatherall, St. Catherine’s College, Oxford University, Oxford, 14th November 2019. Sickle Cell and Gender in Sierra Leone: Why North-South Partnerships Matter. Berghs, M., Gabba, A., Nyandemo, S.E., Dyson, S.M., Roberts, G. T. & Deen, G. Presentation given by Dr. Berghs.

11^th International Critical Management Studies Conference, Open University, 27-29^th June 2019. They can replace you at any time: Ableism and sickle cell in the UK, Berghs, M., Morrison, V.  & Dyson, S.M. Presentation given by V. Morrison and Dr. Berghs.

Intergenerational Futures Workshop: A workshop on public health and life-course, Darwin College, University of Cambridge, 14th of June 2019.

Sickle Cell Anaemia Symposium, Coventry University, 8 October 2018. Sickle Cell Disease: Sickle Cell Disorder, Dyson, S.M., Berghs, M. & Morrison, V. Presentations given by Professor Dyson and Morrison, V.

Sickle Cell and Thalassaemia 30th Anniversary Conference, Nottingham University Hospitals NHS Trust, 18 September 2018. Sickle Cell and Employment: Why Understanding a Health Condition is a Key Resource, Oyeyiola, D. Berghs, M. & Dyson, S.M., Presentation given by Oyeyiola, D.

Lancaster Disability Studies, Lancaster University, 11th to 13th of September 2018, Sickle Cell and Employment Activism, Keimbe, M., Berghs, M. & Dyson, S.M., Presentation given by Keimbe, M. and Dr. Berghs.

Lancaster Disability Studies, Lancaster University, 11th to 13th of September, Routledge Handbook of Disability Activism Symposium, Convenor Dr. Berghs.

Creating diverse coalitions for equality in neoliberal times? :  Locating the emancipatory city , Conference 4th of July 2018, British Sociological Association (BSA) and the Centre for Urban Research on Austerity (CURA) at Ð԰ɵç̨, Co-organiser with: K. Fearon, P. Papaloukas, S. Rivzi, The People’s Forum, Bright Sparks, Arts in Mental Health- Leicestershire NHS Partnership Trust, and Ð԰ɵç̨.

International Health Congress, St Hughes, Oxford, 29^th to 30^th of June 2018. Researching a Neglected Public Health Issue: Sickle Cell and Gendered Research Advocacy for Practice in Sierra Leone. Berghs, M., Dyson, S. M., Gabba, A., Nyandemo, S.E., Roberts, G. T. & Deen, G., Presentation given by Dr. Berghs.

Social Justice, Social Work and Participation. Research Seminar: Involving service users in research and service design and delivery. Ð԰ɵç̨, 27 September 2017, From emancipatory disability research in Sierra Leone to working with politically active disabled people in the UK. Berghs, M.

British Sociological Association - Medical Sociology Conference, University of York, 13th to 15th September 2017, The platitudes of public sociology: Can human rights lead to an ethics for equity? Berghs, M., Atkin, K., Graham, H., Hatton, C. & Thomas, C., Presentation given by Dr. Berghs.

Science in Public: Science, Technology & Humanity. University of Sheffield. 10-12^th of July 2017. Science, Policy and Political Legitimation:  Rethinking Evidence (RCTs) for Policy.  Berghs, M., Atkin, K., Graham, H., Hatton, C. & Thomas, C.. Presentation given by Dr. Berghs.

BSA Postgraduate Forum Regional Event: Public Sociology and the Role of the Researcher: Engagement, Communication and Academic Activism. Ð԰ɵç̨, March 19th 2017. Workshop.

Sierra Leone Multi-Sectorial Strategy to Prevent & Control Anaemia (2017 to 2025) Conference, Freetown, 9th of March 2017. Sickle Cell: A Neglected Public Health Issue. Berghs, M. & Dyson, S., Presentation given by Dr. Berghs.

Simmonds, B. A., & Berghs, M. (2024). Editorial: Intersections of ageing and disability during the COVID-19 pandemic. Frontiers in Sociology, 9, 1501580. 

Berghs, M., Horne, F., Yates, S., Kemp, R. & Webster, A. (2024). The indignities of shielding during the COVID-19 pandemic for people with sickle cell: An Interpretive Phenomenological Analysis, Special Issue Intersections of Aging and Disability During the COVID-19 Pandemic: Frontiers in Medical Sociology, 9: 

Berghs, M. (2024). Bridging the Gap.In Sickle Cell Disease in Sub-Saharan Africa Public Health Perspectives. Bukola, B., Kanayo, K. & Inusa, B. (eds.). London: Routledge.  

 

Ola, B., Olushola, O., Ebenso, B. & Berghs, M. (2024). Sickle Cell Disorder and Its Psychosocial Burdens in Africa. In Sickle Cell Disease in Sub-Saharan Africa Public Health Perspectives. Bukola, B., Kanayo, K. & Inusa, B. (eds.). London: Routledge. 

Berghs, M., Ebenso, B. & Ola B. (2024). The Social Determinants of Severity in Sickle Cell. In Sickle Cell Disease in Sub-Saharan Africa Public Health Perspectives. Bukola, B., Kanayo, K. & Inusa, B. (eds.). London: Routledge. 

Berghs, M. (2024). The Critical Importance of Global Collaboration in Sickle Cell Advocacy and Management. In Sickle Cell Disorders in Sub-Saharan Africa. Bukola, B., Kanayo, K. & Inusa, B. (eds.). London: Routledge. 

Belgian Bioethics Committee - Sickle Cell Carrier Status

POST note on personalized medicine for inherited blood diseases; sickle cell and beta-thalassemia:

Peacebuilding and the inclusion of persons with disabilities (OHCHR): 

COVID-19 parliamentary expertise on health inequalities: 

COVID-19 written evidence submission on impact on health inequalities: 

Member of UNESCO Inclusive Policy Lab: 

Report on the impact of ableism in medical and scientific practice (OHCHR): 

Member of the Ebola Response Anthropology Platform:  

Fiona Relf, research PhD, (2nd supervisor): A Foucauldian Discourse Analysis of interviews with Senior Managers of Special Educational Needs and Disabilities within Local Authorities across England (Completed)

Sharon Anyiam, research PhD, (1st supervisor): Black millennial identity, criminalisation and resistance

Heather Cole, research PhD, (2nd supervisor):  Voices from the Conflict Zone; a trans-cultural ethnographic anthropology of feminist activism in humanitarian spaces 

Barriers and enablers to employment: Black disabled peoples living with Sickle Cell Disorders (SCD), DRILL-UK and the National Lottery, 2018-2020, Research Fellow and CI, PI: S. Dyson, Partners: Sickle Cell Society and the Organisation for Sickle Cell Anaemia Research Sandwell Company Ltd.  

Implications for Public Health: Research of Models and Theories of Disability, NIHR-PHR, 2014-2016, PI: K. Atkin, CI: M. Berghs, H. Graham, C. Hatton and C. Thomas.  

COVID-19: The Psychological and Social Impacts of Shielding on People with Sickle Cell Disorders in the Midlands, Ð԰ɵç̨ VC2020 Project, June 2020-March 2021, Ð԰ɵç̨, NHS, OSCAR Birmingham and OSCAR Sandwell on a co-produced project led by NHS (Leicester).

A Gender Issue: Women and Sickle Cell in Sierra Leone, Ð԰ɵç̨ VC2020 Project, June 2018- June 2019, PI, Co-investigators: S. Dyson, G. Roberts, G. Deen, A.Gabba (SLSCD), S. Nyademo (SCCAN).

Creating diverse coalitions for equality in neoliberal times? :  Locating the emancipatory city , Conference 4th of July 2018, British Sociological Association (BSA) and the Centre for Urban Research on Austerity (CURA) at Ð԰ɵç̨, Co-organiser with: K. Fearon, P. Papaloukas, S. Rivzi, The People’s Forum, Bright Sparks, Arts in Mental Health- Leicestershire NHS Partnership Trust and Ð԰ɵç̨. 

Editorial Board of BMC, PLOS ONE and International Journal of Disability and Social Justice.

I peer-review for a variety of journals such as BMJ, Social Science & Medicine, PLOS ONE, Sociology of Health and Illness, Fontiers, Medical Anthropology, BMC, Health, Cultural Anthropology, Ethnicity & Health and African Journal of Disability among others.

I review books on disability for differing journals as well as publishing houses such as Berghahn, Palgrave, Polity, Oxford University Press etc. I am an editorial Board Member for: Berghahn Book Series– Disability and Chronicity Through the Ethnographic Lens.

I also review  grants for funders like the ESRC, NIHR and Wellcome Trust, as well as international and national funders externally to the United Kingdom.

COVID-19 sickle cell and wellbeing project

Project Report: Ask me if I am okay?

National Haemoglobinopathy Panel: 

South Thames Sickle Cell and Thalassaemia Network: 

Sickle Cell Foundation of Alberta, Canada: 

DRILL Sickle cell and employment project

Individual Support Plans can Ensure Better Working Life for People with Disabilities:

How to support employees with sickle cell disorders

Ensuring diversity and inclusion - Guide to sickle cell work and employment for employers and employees (Workers Individual Support Plans)

Sickle cell and gender project 

"Wi di women den, na we di suffer": A report on sickle cell and gender in Sierra Leone

Sickle cell and education project (Sierra Leone)

Sikul Sel Song (In Krio by Sam Macauley with Sierra Leone Sickle Cell Society)

Sickle cell educational policy guides for schools (Sierra Leone)

Sickle Cell and Higher Education Guides

 Sickle Research in Policy Documents

Analysis of the legal and human rights requirements for genomics in and outside the EU

Disability Research in Policy Documents, Reports and Briefs

Disability Evidence Review - Transforming Access and Outcomes in Higher Education (TAS0): 

Standards for the Clinical Care of Adults with SIckle Cell: 

Sickle Cell Disease in Childhood: Standards and Recommendations for Clinical Care: 

OHCHR Report on the impact of ableism in medical and scientific practice:  

Leonard Cheshire - Research briefing on the Impact of the 2013-2016 Western African Ebola epidemic on people with disabilities: 

UNICEF- Children with Disabilities in Situations of Armed Conflict: 

CSVR -Policy Brief: Addressing diversity and inclusion through transitional justice: 

Institute of Development Studies  (K4D) -Women and girls with disabilities in conflict and crises:  

Equality and Human Rights - Disability Reading List: 

Disability Visibility Campaign UEA 2021 - Disability Reading List:  

 Disability Activism Edited Book Reading Lists: